Documenter les expériences des
personnes vivant avec des MNT

Christopher Agbega
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Noura Arnous
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Kenneth Mkandawire portrait
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Documenter les expériences des
personnes vivant avec des MNT

empty
Modina Khatun portrait
empty
Nfortentem Aaron portrait
empty
Sabiha Khan portrait

Documenter les expériences des
personnes vivant avec des MNT

Christopher Agbega
empty
Noura Arnous
empty
Kenneth Mkandawire portrait
empty

Documenter les expériences des
personnes vivant avec des MNT

empty
Modina Khatun portrait
empty
Nfortentem Aaron portrait
empty
Sabiha Khan portrait

My name is Christopher Agbega and I’m from Ghana. For over a decade, I have lived with a degenerative condition known as Hereditary Motor Sensory Neuropathy, diagnosed nine years too late.

It's been a little over 2 years now since I got involved in the Our Views Our Voices initiative and was part of the team that developed the Ghana Advocacy Agenda of People with Living with NCDs. My experience with the NCD movement has been incredible. Through my NCD Diary I share my journey from being diagnosed to becoming an advocate. Listen in!

How I lost and found my strength

21 November 2020

Prelude

21 November 2020

Episode 1: How I lost and found my strength

28 November 2020

Episode 2: How I learnt to demand change

NCD Diaries


What good can come out of this condition? All that period that I didn't have a diagnosis meant that I had a lived experience that was a very important tool to bring in change.

Chris K. Agbega, Our Views, Our Voices Global Advisory Committee member, Ghana

Découvrez les Carnets MNT

Visuel icon Modina Khatun

Modina Khatun

Audio icon Christopher Agbega

Christopher Agbega

Texte icon Nfortentem Aaron

Nfortentem Aaron

Audio icon Snehal Nandagawli

Snehal Nandagawli

Visuel icon Nkiruka Okoro

Nkiruka Okoro

Texte icon Sabiha Khan

Sabiha Khan

Texte icon Noura Arnous

Noura Arnous

Visuel icon Jotham Johnson

Jotham Johnson

Visuel icon Benjamin Olorunfemi

Benjamin Olorunfemi

Texte icon Maryanne Njuguna

Maryanne Njuguna

Texte icon Mariana Gomez

Mariana Gomez

Texte icon Karmila Munadi

Karmila Munadi

Texte icon Grace Achodo

Grace Achodo

Texte icon Joselyne Simiyu

Joselyne Simiyu

Texte icon Edith Mukantwari

Edith Mukantwari

Visuel icon Anita Sabidi

Anita Sabidi

Visuel icon Lucía Feito Allonca

Lucia Feito Allonca

Visuel icon Neema Mohamed

Neema Mohamed

Visuel icon Oduor Kevin Otieno

Oduor Kevin

Texte icon Takwe Boniface Njecko

Takwe Boniface Njecko

Texte icon Joseph Rukelibuga

Joseph Rukelibuga

Texte icon Brenda Chitindi

Brenda Chitindi

Texte icon Ashla Rani MP

Ashla Rani MP

Texte icon Chitrika De Mel

Chitrika De Mel

Texte icon Wendy Reaser

Wendy Reaser

Visuel icon Robert Onyango

Robert Onyango

Visuel icon Amber Huett-Garcia

Amber Huett-Garcia

Visuel icon Linh Nguyen Ha

Linh Nguyen Ha

Audio icon Omar Abureesh

Omar Abu Reesh

Visuel icon Mirriam Wakanyi

Mirriam Wakanyi

Texte icon John Gikonyo

John Gikonyo

Texte icon Samuel Kumwanje

Samuel Kumwanje

Audio icon Liz  Owino

Liz Achieng Owino

Visuel icon Mazeda Begum

Begum Mazeda

Visuel icon Gloria Haro

Gloria Haro

Visuel icon Katherine Berkoh

Katherine Berkoh

Texte icon Jean Marie Blaise Migabo

Jean Marie Migabo

Visuel icon Rohan Arora

Rohan Arora

Audio icon Allison Ibrahim

Allison Ibrahim

Texte icon Jaime Barba

Jaime Barba

Audio icon Seema Bali

Seema Bali

Texte icon Shamim Talukder

Shamim Talukder

Texte icon Michael Donohoe

Michael Donohoe

Texte icon Adjo Rose Lankou

Adjo Rose Lankou

Visuel icon Salome Agallo

Salome Agallo

Visuel icon Ama Quainoo

Ama Quainoo

Visuel icon Vivian Gyasi Sarfo

Vivian Gyasi Sarfo

Visuel icon Lion Osarenkhoe Chima-Nwogwugwu

Lion Chima-Nwogwugwu diary

Texte icon Jazz Sethi

Jazz Sethi

Texte icon Stephen Ogweno

Stephen Ogweno

Visuel icon Betsy Rodriguez

Betsy Rodriguez