Documentando las experiencias de
personas que viven con ENT 

Christopher Agbega
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Noura Arnous
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Kenneth Mkandawire portrait
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Documentando las experiencias de
personas que viven con ENT 

empty
Modina Khatun portrait
empty
Nfortentem Aaron portrait
empty
Sabiha Khan portrait

Documentando las experiencias de
personas que viven con ENT 

Christopher Agbega
empty
Noura Arnous
empty
Kenneth Mkandawire portrait
empty

Documentando las experiencias de
personas que viven con ENT 

empty
Modina Khatun portrait
empty
Nfortentem Aaron portrait
empty
Sabiha Khan portrait

My name is Christopher Agbega and I’m from Ghana. For over a decade, I have lived with a degenerative condition known as Hereditary Motor Sensory Neuropathy, diagnosed nine years too late.

It's been a little over 2 years now since I got involved in the Our Views Our Voices initiative and was part of the team that developed the Ghana Advocacy Agenda of People with Living with NCDs. My experience with the NCD movement has been incredible. Through my NCD Diary I share my journey from being diagnosed to becoming an advocate. Listen in!

How I lost and found my strength

21 November 2020

Prelude

21 November 2020

Episode 1: How I lost and found my strength

28 November 2020

Episode 2: How I learnt to demand change

NCD Diaries


What good can come out of this condition? All that period that I didn't have a diagnosis meant that I had a lived experience that was a very important tool to bring in change.

Chris K. Agbega, Our Views, Our Voices Global Advisory Committee member, Ghana

Conoce los diarios de las ENT

Audio icon Christopher Agbega

Christopher Agbega

Texto icon Nfortentem Aaron

Nfortentem Aaron

Audio icon Snehal Nandagawli

Snehal Nandagawli

Visual icon Nkiruka Okoro

Nkiruka Okoro

Texto icon Sabiha Khan

Sabiha Khan

Visual icon Modina Khatun

Modina Khatun

Texto icon Noura Arnous

Noura Arnous

Visual icon Jotham Johnson

Jotham Johnson

Visual icon Benjamin Olorunfemi

Benjamin Olorunfemi

Texto icon Maryanne Njuguna

Maryanne Njuguna

Texto icon Mariana Gomez

Mariana Gomez

Texto icon Karmila Munadi

Karmila Munadi

Texto icon Grace Achodo

Grace Achodo

Texto icon Joselyne Simiyu

Joselyne Simiyu

Texto icon Edith Mukantwari

Edith Mukantwari

Visual icon Anita Sabidi

Anita Sabidi

Visual icon Lucía Feito Allonca

Lucia Feito Allonca

Visual icon Neema Mohamed

Neema Mohamed

Visual icon Oduor Kevin Otieno

Oduor Kevin

Texto icon Takwe Boniface Njecko

Takwe Boniface Njecko

Texto icon Joseph Rukelibuga

Joseph Rukelibuga

Texto icon Brenda Chitindi

Brenda Chitindi

Texto icon Ashla Rani MP

Ashla Rani MP

Texto icon Chitrika De Mel

Chitrika De Mel

Texto icon Wendy Reaser

Wendy Reaser

Visual icon Robert Onyango

Robert Onyango

Visual icon Amber Huett-Garcia

Amber Huett-Garcia

Visual icon Linh Nguyen Ha

Linh Nguyen Ha

Audio icon Omar Abureesh

Omar Abu Reesh

Visual icon Mirriam Wakanyi

Mirriam Wakanyi

Texto icon John Gikonyo

John Gikonyo

Texto icon Samuel Kumwanje

Samuel Kumwanje

Audio icon Liz  Owino

Liz Achieng Owino

Visual icon Mazeda Begum

Begum Mazeda

Visual icon Katherine Berkoh

Katherine Berkoh

Texto icon Jean Marie Blaise Migabo

Jean Marie Migabo

Visual icon Rohan Arora

Rohan Arora

Visual icon Gloria Haro

Gloria Haro

Texto icon Adjo Rose Lankou

Adjo Rose Lankou

Audio icon Allison Ibrahim

Allison Ibrahim

Texto icon Stephen Ogweno

Stephen Ogweno

Texto icon Michael Donohoe

Michael Donohoe

Texto icon Jazz Sethi

Jazz Sethi

Texto icon Shamim Talukder

Shamim Talukder

Visual icon Vivian Gyasi Sarfo

Vivian Gyasi Sarfo

Visual icon Betsy Rodriguez

Betsy Rodriguez

Visual icon Ama Quainoo

Ama Quainoo

Visual icon Salome Agallo

Salome Agallo

Audio icon Seema Bali

Seema Bali

Texto icon Jaime Barba

Jaime Barba