Documenting the experiences
of people living with NCDs

NCD Diaries
NCD Diaries
Lived experience of Type 1 diabetes
NCD Diaries
Lived experience of cancer and autoimmune disorder
NCD Diaries

Documenting the experiences
of people living with NCDs

Nupur Lalvani
Lived experience of sickle cell disease
Joshua Makubu
Diana Gittens
NCD Diaries
Christopher Agbega

About NCD Diaries

The NCD Diaries use rich and immersive multimedia approaches to share lived experiences to drive change, using a public narrative framework.

As part of the Our Views, Our Voices initiative, the NCD Diaries are a participatory, community-based and multimedia storytelling project that illustrates and highlights individual lived experiences and calls for action on NCDs.

NCD Diaries and themes

Each series of NCD Diaries will have a thematic focus, drawing on the key pillars of the global Advocacy Agenda of People Living with NCDs and, potentially, more specific themes, depending on relevant advocacy opportunities.

The current NCD Diaries theme is:

Image
The experience of living with multiple chronic conditions

The experience of living with multiple chronic conditions

The first series of the NCD Diaries project will illustrate the realities and experiences of living with multiple chronic conditions; that is, either two or more NCDs, or NCDs and an infectious disease (e.g. HIV, TB, COVID‑19, etc.).

Through their Diaries, the lived experience advocates will have the opportunity to highlight the growing need to reorient health systems to integrate care packages across multiple chronic conditions, through a holistic approach that puts people first.

This first NCD Diaries series will run from April through July 2021.

As part of the selection process, potential Diarists will indicate their interest in the thematic focus of that series. For the visual format, the photographic content should be developed in line with this theme. For the audio and text formats, at least one of the three Diary entries should incorporate the selected theme.

NCD Diaries can be created in three formats:

NCD Diaries visual format

01 Visual 

A visual storytelling format featuring a series of images that represent the real and personal experiences of Diarists and their interaction with the healthcare system, local context and community. Drawing from elements of the PhotoVoice approach, NCDA will support Diarists in capturing images representing their lived experiences and contextualise them within the Advocacy Agenda of People Living with NCDs to present their recommendations and calls to action. The Diary will take the form of a series of up to five photos and accompanying captions.

NCD Diaries visual format

NCD Diaries audio format

02 Audio podcast

A spoken word/podcast format through which Diarists will share their experiences and challenges of living with NCDs, their local context, community interactions and calls to action in a conversational manner, either in first person or in conversations with others, e.g. family, community members, advocates, etc. The Diary will take the form of two to three fifteen-minute recordings.

NCD Diaries written format

03 Written text

A blog/testimonial format through which Diarists will share their lived experiences through storytelling and public narrative, reporting on experiences, challenges of living with NCDs and recommendations for change. The Diary will take the form of up to three written entries of a maximum of 250 words.

NCD Diaries written format

Explore NCD diaries

Written Diary icon Stephen Ogweno

Stephen Ogweno

Written Diary icon Jaime Barba

Jaime Barba

Written Diary icon Michael Donahoe

Michael Donohoe

The current theme is

The experience of living with multiple chronic conditions

Become a Diarist

The NCD Diaries are possible thanks to NCD Alliance’s partnership with the Leona M. and Harry B. Helmsley Charitable Trust.