Hi, my name is Neema Mohamed and I am from Dar es Salaam, Tanzania. I have been living with sickle cell disease since I was ten years old. I have a positive mindset and I have devoted my life to advocacy for sickle cell disease and non-communicable diseases in general. Since joining the Tanzania NCDs Alliance, my journey started to be meaningful.

I'm sharing my story because I want the world to know that having sickle cell disease is not the end of the world. A sickle cell patient is a true warrior. You can achieve anything you want in life. The caregiver must support these patients and not deprive them of the chance to do better in life. We are the true warriors. We are going to break the sickle cell cycle.

Visual Diary

21 July 2022

Diagnosed with sickle cell disease

I was age 10 when I was diagnosed with sickle cell disease. The healthcare provider at the public clinic didn’t believe that I would have developed sickle cell as there’s no known history in my family, so she wasted a lot of time until my mother, a nurse, convinced her to examine me. After diagnosis, I started treatment immediately. My mother was there full-time, and that helped a lot. I began treatment, following a care regimen to reduce severe complications with the assistance of my mother, who played the role of caregiver and my healthcare provider at the same time.

neema_mohamed-photo_1-1120x532.jpg

I accept the reality that I have sickle cell disease, and I plead with sickle cell patients that when you accept your condition, the door to happiness and opportunity will start to open.

Visual Diary

21 July 2022

Journey as sickle cell warrior

My journey as a sickle cell warrior wasn't easy. A lot of pain due to severe crises, a lot of hospitalizations. I was a bright student but often couldn’t attend school. My expenses grew; I needed many supplements, and my mother couldn't always afford the basic medication, often taking out loans to pay for my hospital bills and medication. Luckily, I was able to access doctor’s visits for free through a project for sickle cell patients. My doctor helped a lot through advice on a balanced diet, natural medicine, and supplements.

neema_mohamed-photo_2-1120x532.jpg

This is my health passport, which is optimally utilized me a sickle cell patient and our healthcare providers as a tool to track my progress and a guide in the provision of my targeted care in the event of an emergency or clinic.

Visual Diary

21 July 2022

A blessing in disguise

I'm committed to sickle cell advocacy until the end of the world. A challenge we face as sickle cell warriors is receiving blood transfusions. Many people in Tanzania living with sickle cell or other NCDs such as cancer and kidney disease require blood transfusions, yet many die due to lack of access. Myself and another sickle cell warrior formed the Bone and Blood Foundation, which raises awareness in the community about the importance of donating blood. Our aim is to save lives and help our National Blood Transfusion Service reach their annual target.

neema_mohamed-photo_3-1120x532.jpg

Blood transfusion is a core treatment for people living with sickle cell disease and other NCDs. Every chance I get to raise awareness of sickle cell disease, I take a minute to remind the community that donating blood is important in saving people's lives.

Visual Diary

21 July 2022

We are strong together

Tanzania NCDA is an umbrella uniting us all; since joining, I've started seeing my condition in a different light. Shared NCD challenges included high treatment costs, delayed diagnosis, lack of access to treatment and counselling services, high transportation costs to health facilities, stigma, and healthcare professionals who are not well-equipped to care for NCDs. We provide education on NCD prevention and treatment to people living with NCDs, health professionals, caregivers, and local leaders, based on our own experience. This ensures that people living with NCDs have access to the right knowledge and services to manage their condition.

neema_mohamed-photo_4-1120x600.jpg

By providing education to the community on the effects of NCDs, the photo above was taken to commemorate a cancer day around the world, when we rejoiced over the news of a free cancer test.

Visual Diary

21 July 2022

My view and my voice

NCDs affect our daily lives in every regard, and thousands of Tanzanians lose their lives to NCDs every year. I call on the government, leaders, and other stakeholders to ensure a public awareness campaign in schools and communities on NCDs and their risk factors. Strengthen our primary health care facilities to ensure affordable essential medicines and provision of timely treatment. Develop and enforce laws, policies, and guidelines at all levels that protect people living with NCDs. Ensure affordable National Health Insurance for all.

neema_mohamed-photo_5-1120x532.jpg

A photo of me speaking on how NCDs can be prevented and treated in Tanzania.

NCD Diaries


Sickle cell disease will not stop me from achieving my dreams.

Neema Mohamed, lived experience of sickle cell disease, Tanzania

About NCD DIARIES

The NCD Diaries use rich and immersive multimedia approaches to share lived experiences to drive change, using a public narrative framework.

Explore NCD diaries

Podcast Diary icon Christopher Agbega

Christopher Agbega

Written Diary icon Noura Arnous

Noura Arnous

Written Diary icon Sabiha Khan

Sabiha Khan

Visual Diary icon Kenneth Ngwira Mkandawire

Kenneth Ngwira Mkandawire

Visual Diary icon Modina Khatun

Modina Khatun

Visual Diary icon Benjamin Olorunfemi

Benjamin Olorunfemi

Visual Diary icon Nkiruka Okoro

Nkiruka Okoro

Visual Diary icon Jotham Johnson

Jotham Johnson

Podcast Diary icon Snehal Nandagawli

Snehal Nandagawli

Written Diary icon Mariana Gomez

Mariana Gomez

Written Diary icon Karmila Munadi

Karmila Munadi

Written Diary icon Evelyn Santos

Evelyn Santos

Written Diary icon Grace Achodo

Grace Achodo

Written Diary icon Maryanne Njuguna

Maryanne Njuguna

Written Diary icon Joselyne Simiyu

Joselyne Simiyu

Visual Diary icon Anita Sabidi

Anita Sabidi

Written Diary icon Wendy Reaser

Wendy Reaser

Written Diary icon Takwe Boniface Njecko

Takwe Boniface Njecko

Written Diary icon Chitrika De Mel

Chitrika De Mel

Written Diary icon Joseph Rukelibuga

Joseph Rukelibuga

Visual Diary icon Lucía Feito Allonca

Lucia Feito Allonca

Written Diary icon Brenda Chitindi

Brenda Chitindi

Podcast Diary icon Chikhulupiliro Stanley Ng'ombe

Chikhulupiliro Stanley Ng'ombe

Visual Diary icon Neema Mohamed

Neema Mohamed

Visual Diary icon Oduor Kevin Otieno

Oduor Kevin

Written Diary icon Ashla Rani MP

Ashla Rani MP

Visual Diary icon Katherine Berkoh

Katherine Berkoh

Visual Diary icon Mirriam Wakanyi

Mirriam Wakanyi

Visual Diary icon Amber Huett-Garcia

Amber Huett-Garcia

Visual Diary icon Mazeda Begum

Begum Mazeda

Visual Diary icon Linh Nguyen Ha

Linh Nguyen Ha

Podcast Diary icon Omar Abureesh

Omar Abu Reesh

Podcast Diary icon Liz  Owino

Liz Achieng Owino

Written Diary icon John Gikonyo

John Gikonyo

Written Diary icon Samuel Kumwanje

Samuel Kumwanje

Written Diary icon Jean Marie Blaise Migabo

Jean Marie Migabo

Written Diary icon Edith Mukantwari

Edith Mukantwari

Written Diary icon Adjo Rose Lankou

Adjo Rose Lankou

Visual Diary icon Gloria Haro

Gloria Haro

Visual Diary icon Rohan Arora

Rohan Arora

Visual Diary icon Robert Onyango

Robert Onyango

Podcast Diary icon Vijayalakshimy Silvathorai

Vijayalakshimy Silvathorai

Podcast Diary icon Allison Ibrahim

Allison Ibrahim

Podcast Diary icon Seema Bali

Seema Bali

Visual Diary icon Salome Agallo

Salome Agallo

Visual Diary icon Ama Quainoo

Ama Quainoo

Visual Diary icon Betsy Rodriguez

Betsy Rodriguez

Visual Diary icon Vivian Gyasi Sarfo

Vivian Gyasi Sarfo

Visual Diary icon Lion Osarenkhoe Chima-Nwogwugwu

Lion Chima-Nwogwugwu

Written Diary icon Shamim Talukder

Shamim Talukder

Written Diary icon Jazz Sethi

Jazz Sethi

Written Diary icon Michael Donohoe

Michael Donohoe

Written Diary icon Jaime Barba

Jaime Barba

Written Diary icon Stephen Ogweno

Stephen Ogweno

The latest theme is

Equity and UHC

View the Diaries