My name is Jotham Johnson, I am a lawyer from Freetown in Sierra Leone. I am living with cardiovascular disease (high blood pressure) and am a stroke survivor.
Through my experience, I found the strength to become an advocate, and often speak on television and radio programs to spread awareness on behalf of people living with stroke and NCDs.
I would like my diary to dispel myths and misconceptions on cardiovascular disease, stroke and NCDs, and give hope to others. I shed light on challenges and what we can do to better prevent stroke in my country, which also holds implications for other types of NCDs.
15 February 2023
High blood pressure and its complications
I was diagnosed with high blood pressure in 2013 at age 21. I was given medication yet little information about the adverse effects of not adhering to medical guidelines. Over time, I disregarded my condition by not taking my medication, gaining weight and getting stressed over my law studies. I thought that I was too young to have any negative effects. Like many Sierra Leoneans, I didn’t have a personal doctor, which was a key reason why my condition was not monitored; your health is considered your responsibility. There was no sensitization from stroke survivors to warn me about the importance of seeking frequent medical checkups. Nine years later, I suffered a hemorrhagic stroke.
15 February 2023
Life after stroke
After experiencing hemorrhagic stroke, I was rushed to hospital where my blood pressure was stabilised. However, my left leg and arm had stopped functioning. Depression hit so hard, as I couldn’t stand or move, and when I sat down, I was in so much pain. I began intensive physio at a local hospital, where I learned to gradually walk again. I thank God for the specialised care, and for my family who helped ensure that a good quality of life is possible after stroke. Hospital care and physiotherapy for stroke survivors are good for those who can afford it, which makes me question why prevention services are not of a similar standard, to prevent stroke in the first place.
15 February 2023
Stroke Association of Sierra Leone
I am Vice President of the Stroke Association of Sierra Leone, a local NGO comprised of stroke survivors and caregivers, including those living with NCDs such as high blood pressure, diabetes, and kidney disease. Our mission is to eradicate stroke in Sierra Leone through awareness raising and advocacy for prevention and care. In my country, many people believe stroke to be a witchcraft attack and hence seek care from traditional healers and pastors, which oftentimes leads to death. This is also the case for people living with a range of other NCDs. People only go to hospitals as a last resort, at which point it is too late.
15 February 2023
My broader community of people living with NCDs
Through my work with Stroke Association of Sierra Leone, I have learned a lot about the challenges faced by other people living with NCDs when it comes to prevention. Firstly, for most people living with NCDs, treatment is often too costly, so people either do not adhere to their medication or do not seek medical attention for their symptoms. So much pain would be prevented if there is more awareness and better follow up services by health providers, in order to monitor and provide care for those that are the most at risk of stroke.
15 February 2023
I am a voice for change: my calls to action
I am honoured to have spoken before the Minister and Deputy Minister of Health during the opening of the Stroke Ward at Connaught Hospital, about initiatives to implement in order to entrench prevention and care for stroke and other NCDs. I believe there is hope, yet decision-makers must act and we the advocates must continue to raise our voices.
I call on the government of Sierra Leone to price medicines at an affordable rate, increase diagnostic equipment, and ensure access to good quality drugs. I call on the public to take people who fall sick to hospitals rather than traditional healers. I call on stroke survivors to dispel myths and societal stigma regarding NCDs, and for decision-makers to promote awareness and health-promoting policies and practices in our communities.
NCD Diaries
As long as there is life, there is hope. Never give up.
Jotham Johnson, lived experience of multiple chronic conditions, Sierra Leone
About NCD DIARIES
The NCD Diaries use rich and immersive multimedia approaches to share lived experiences to drive change, using a public narrative framework.