The India Advocacy Agenda of People Living with NCDs crystallises recommendations of people living with NCDs, representing a wide range of NCD conditions for improvements in NCD prevention and control in India.
PublishedDec 2019
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In 2017, four community conversations involving 49 people living with NCDS were facilitated by the Healthy India Alliance, which helped to identify the needs, challenges and priorities of people living with NCDs and informed the development of the global Advocacy Agenda of People Living with NCDs.
In 2018, a working group on meaningful involvement of people living with NCDs and focus on palliative care was formed within the Healthy India Alliance to conduct four regional consultations (in the northern, southern, eastern and western parts of India). Results from the four consultations, involving 82 people living with NCDs and 43 civil society organisations working on people-centred care, alongside insights from the four community conversations were distilled to build the India Advocacy Agenda of People Living with NCDs. The India Advocacy Agenda calls for the highest level of political support to put the needs of people living with NCDs at the centre of NCD policy and practice in India. Advocacy ‘asks’ highlighted are organised under four key pillars: human rights and social justice; prevention; treatment care and support; and meaningful involvement.
Community Conversations participant, India
The Healthy India Alliance launched the national advocacy agenda at their 3rd annual national civil society consultation on NCDs. This was an opportunity to raise the profile of the advocacy agenda and galvanise all NCD stakeholders to amplify the priority ‘asks’ of people living with NCDs.
The development of India’s advocacy agenda resulted in the formation of regional networks and a national network of people living with NCDs. The alliance is working collaboratively with these networks, to strengthen and guide their work to accelerate a person-centered NCD response in India.
During the COVID-19 pandemic, the Healthy India Alliance has amplified the specific concerns and asks of people living with NCDs, including submitting a statement on their needs to India’s Ministry of Health.